Category: Struggle

Cancer, Character, Christianity, Courage, Personal, Struggle

No Hair, Don’t Care . . .Or Do I?

Sally

As the date for my first chemo infusion swiftly approaches there were some things I needed to consider and a port that needed to be installed. There is a device called the DigniCap Scalp Cooling System, developed in Sweden and used in Europe since the 1970’s, that had finally been approved by the FDA for use in the US in December of 2015. The function of this cap is to keep your hair follicles cold enough that they shrink thereby absorbing less of the chemotherapy medicine which otherwise would kill the follicles, thus the hair loss. This silicon cap worn tight on the scalp is computer-controlled and monitors contact points on the scalp to continually adjust and keep the temperature of the scalp at 32F. There is an hour cooling period prior to the infusion that gets your scalp down to temperature and you wear it through the whole process and continue to wear it for a couple of hours after. They tell you that this devise will greatly reduce hair loss but in the brochure there is a whole lot more to it. For instance, you can’t color or bleach your hair, you can’t use most shampoos or hair products that have chemicals in them, you can’t use blow dryers or curling irons, you can’t tie your hair back in ponytails, and you need to comb your hair with a wide tooth comb several times a day to keep the hair that is falling out from matting with the hair that is still hanging on. This sounds like a nightmare because I’ve been dying my hair for thirty years, I know it’s grey and if I can’t keep up with the dye job it will grow out like a skunk stripe.

I needed to have someone give it to me straight, what the realistic expectation of hair loss is even with the use of this cap. I called up one of the nurses who works the chemotherapy wing and I asked her some really pointed questions. I could tell that she was trained to relay everything in a super optimistic way so I finally had to say, “Listen, I don’t care about the vanity of this situation. I need to know for upkeep and overall results what I can expect from this cap because I am considering shaving my head anyway.” She finally admitted that the cap was originally designed to save hair follicles from permanent damage not necessarily to stop the hair loss during treatment. She said I can still expect to lose up to 50% of my hair. This is information I needed because now it makes more sense for me to do what I can to simplify my hair care and to reduce the shock of handfuls of hair coming out. I decide to have my stylist (who also happens to be my sister) shave my head on all sides leaving a cute amount on top to play with. She did a balayage bleach treatment so that the hair will look more natural and not a stripe if it grows. This was a big deal just because I have long “blonde” hair and I’ve never cut it very short in my life. Here was another hurdle to overcome on my Fearless Journey Into The Unknown.

I think, as women, we tend to find our identities in things external. How we think we look to the world and to ourselves can either give us confidence or make us insecure. We might hide behind things like fashion, hair, makeup or high end bling. I felt empowered by my decision to face hair loss straight on by shaving my head but the minute I stepped out into public I had to face the reality that I no longer looked like “myself” and I could no longer hide behind that false sense of security. I had a really hard time with that person looking back at me in the mirror. She looked so foreign and she looked so masculine. It was hard to be out and about because I felt like people were assuming I might be gay or liberal. Yes, I said it. We, as a society, use looks as a means to stereotype people and it can lead to judgmental assumptions. These assumptions are not necessarily good or bad but they often aren’t true and when we deal with people based off of something that is not true it limits our ability to know them and love them for who they really are. I’m not upset by homosexuality nor by liberal belief systems, but I should be aware that I myself have preconceived ideas of what looks “gay” or “liberal” or whatever and how that effects my ability to accept and love people where they are for who they are regardless of how they present themselves. This is a lesson in love that I didn’t see coming and I’m so grateful for it. I need to learn to see people the way God sees people. I need to see their soul, their heart, their dreams, their hurts, their humanity. I need to see them the way I want to be seen, deeper than the external allows.

I John 4:7-8 NLT “Dear friends, let us continue to love one another, for love comes from God. Anyone who loves is a child of God and knows God. But anyone who does not love does not know God, for God is love.”

I Corinthians 16:14 NLT “And do everything with love.”

Luke 6:32 NLT “If you love only those who love you, why should you get credit for that? Even sinners love those who love them!”

John 15:17 NLT “This is my command: love each other.”

God is really working on my heart, melting away a hard shell that has been constricting and deluding me for years. Love is an action and an attitude. It’s an openness that wants to embrace all people for all that they are. It strips away external and embraces eternal (the soul). The only way to win people in this upside down world is to love them. I need that same curtesy, especially now. I’m broken wide open and feel free to freely love for the first time in my life, and I’m thinking of taking the hair one step further by dying it pink. God is good too. That first trip to the grocery store, a woman stopped me in the isle and said that she loved my look and she wanted me to know. I have had a lot of people tell me that this style really seems to embody my real personality and that I really can rock the shave. I have never had so many strangers bless me with compliments in my life. I take this as a hug from God telling me that I am still cute, I’m more than my hair, and He helped bolster my confidence.

**Update, about three weeks after my first infusion treatment the hair started falling out in clumps and handfuls. I have to testify that shaving my head the way I did was very much the right decision for me. It was alarming to see the amounts of hair in my hand and collected around the drain. I am very thin on the sides now. I think this would have been way harder to navigate if I was still trying to hang on to the illusion of hair. It is hard to keep up with the shedding even when I don’t have as much longer hair to worry about.

Books, Character, Christianity, Courage, Forgiveness, Friendship, Personal, Struggle

Courageous

Sally

Recently I was invited to a birthday party, a party that I had wanted to be included in from the first I knew of it’s existence. But as the day and time of the party drew near, my anxiety about having to walk into this party increased. As I let out a deep sigh and bolstered myself into the room, I was struck by the dreaded feeling of not belonging. I instantly relived old hurts of not fitting in, not having a place, not being seen and the humility that comes from a deep secret fear that my being there was a mistake. You see, the room was full of wonderful women, smart women, revolutionary women who fight daily against social injustice, inequality, abuse, racism and mediocrity. Several of the women there are great lovers of humanity, or of God, and at the very least great lovers of life. I can’t say that I’m really a great fit for any of these descriptors thus maybe not a great fit as friendly companionship to these woman. The lie is that I’m not an equally valuable contributor to society nor to the room. I’m just simply me, and a wounded me at that. I mostly wanted to hide. In hiding I could possibly stay protected and maybe in control of my lurking suspicion that at 43 years of age I haven’t made any significant contributions or a lick of positive difference on this planet. The ever present question, “What am I doing with my life?”, is especially loud and clear this evening. The weird thing is I’m surrounded by friends and acquaintances. I “know” everyone at this party from some place of kindness and goodwill in my community or another so why do I feel so alone and so very uninvited when quite clearly I was?

God heard my cry. He always does because He is faithful and He comforted me in that special way He does, through books. One of the friends from the evening sent me a text the very next day about a book she was about to purchase. She had no idea I was struggling nor did she have any inkling that this book would be for me. She was just sharing her next book purchase with me, off the cuff. No surprises here, the title was perfectly appropriate to what I was still processing from the night before. The book was Uninvited: Living Loved When You Feel Less Than, Left Out, and Lonely by Lysa TerKeurst. I promptly bought it myself and what an honest read it was as it put balm and ointment on my fears, hurts and insecurities. Lysa, the author, suggested two fears I might have been wrestling with that night, two fears that lurk in the shadows of every social engagement I have had the courage to expose myself to in the last several years. They are 1. The fear of abandonment and 2. The fear of losing one’s identity. I accept the first fear as my own because I was abandoned by someone I had poured twelve years of love and acceptance into. She was a dear friend who rejected me in an instant when we had our first major disagreement. I believe that her pain was too great for her to overcome and therefore it was easier for her to reject and exile me rather than face it and find ways to heal and reconcile. But even with the insight God has been gracious to give me on the situation, I still have my own personal wounds turned fears to overcome. To look out into that room at that party was to see many potential close friendships that might easily about-face in a nano second if they find something in me that they don’t like because it’s happened before. As Lysa (the author) pointed out, “Things of this world all eventually reveal what incapable anchors they really are.” “Things” for me is actually “people”, and “people” is actually “close-friend”, and “close-friend” is actually someone I experienced a “soul-tie” with and that “soul-tie” when ripped apart naturally took part of my soul away with her. Painful. Very.

As for the part about losing one’s identity, I guess I need to remind myself that it’s my identity in Christ that is truth, not an identity that suggests that what happened in that friendship gone wrong translates into my being a bad friend, a bad person, or someone who has nothing good to offer others. Those are feelings that were born out of brokenness, but as Lysa kindly reminds me,

“Feelings are broken boards. Only truth is solid, unchanging, and stable through and through. Old patterns of thought must be torn out, and a new way of looking at the core of who I am using God’s truth has to be put into place. My identity must be anchored to the truth of who God is and who He is to me.”

My decision is made; I will continue to learn and grow and present the best version of myself to the world and trust that God will bring people into my life who are doing the same. In the mean time, I might be lonely and I might feel unseen and I might not be invited but I am not the sum total of those insecurities. Instead, I am loved by God and I am well on my way to aligning myself with my God given purpose and what/where/and who He has mapped out for me. What I was longing for in the party room that night was connectivity. I long to connect with women who are doing life with the Lord on a more enlightened plain than I’m on because I want to be lifted up, challenged and forced to grow beyond where I currently am. I want to see the world through different perspectives than my own, in ways that unravel my predisposed prejudices and replace them with humbling, God revealed realities I hadn’t considered before. I want to be in safe communion with women who are not intimidated by my fumbling and short comings but who can lovingly show me to myself for the purpose of spiritual growth and mutual celebrations of God’s grace through His discipline and admonishment. These women may or may not be those who were in attendance that night but it doesn’t matter because I’m believing in God’s provision. He will deliver the perfect friendships at the perfect time in line with His refinement and purpose for my life. I will not be captivated by the fear that this loneliness is more than temporary and for a season. I am holding out for the goodness and fulness of His provision as He deems fit. My only obligation is to press on and boldly play my unique note to the world.

One thing I can do while I wait is contemplate and act appropriately on the question Lysa asks;

“Do I walk into situations empty and dependent on others to look for ways to bless me?”

I don’t want to be that needy person in the room, the one that needs reassurance and validation to be there. I’d much rather be overflowing with God’s love in a way that I can offer it freely to others rather than needing others to fill up a deficit within myself. Let’s face it, very few people can detect the deficit for what it is in others none the less fill it up to satisfaction. Only God fits into those God-sized holes. But what a refreshment it would be to enter into a social situation with confidence that I’m there to be a blessing to someone rather than with the nervousness of an unmet need looking to be filled.

Lysa brings up another very important factor that rejection tries to steal from us, our hesitancy to trust again. Humans break trust all the time, sometimes on purpose. I trusted that I could be honest with my ex-friend and I was wrong, she trusted that I would never speak up on some subjects that bothered me and she was wrong. This lays fertile ground for the idea that it is absolutely not safe to be vulnerable, transparent or trusting of other human beings no matter how long you have known them or how long you have professed to love them and them you. Lysa describes this well,

“Girls who have the lingering whispers of rejection still echoing in the hollows of their soul rarely feel completely held safe. So they look at gaps of the unknown and hesitate at best. Run away at worst. They crave for life to make sense. They cringe when it doesn’t. It’s unfathomable to take a leap into something as uncertain as air and expect to stay intact. What we see will violate what we know unless what we know dictates what we see.”

God has been whispering so much truth to my soul about my lost friendship that I can finally see it through His eyes. It was a pruning from which significant growth on my part was had. It was a humbling so that I can approach future relationships with more love and grace than ever before. It was reprioritizing so that I can have no other before Him (and also not before my own husband). It was a sure way for Him to draw me to Himself because the pain was so acute and so long suffering (several years have already passed and it still seems like my loss was realized yesterday). She never was my enemy and I refuse to think she is now, it is just a reconciliation that is still waiting to happen and I continue to pray and trust in God to orchestrate it. So naturally I’m gun shy at this friendship thing now. I am reluctant to show my heart to people for fear that they will misunderstand me or worse not care. I have trust issues trying to take hold. But God will not fail me, He will cross the room with me at these parties and He will commune with me in the awkward silences or pregnant stares. He will make me able to withstand another lost friendship should it come to that and He will be diligent in teaching me important lessons through it. He allows me to be me in all my imperfections and so I will be courageous and allow myself to be seen, to be vulnerable, to hold my heart open to the next lovely creature who also wants to be seen and to be vulnerable and to hold open her heart as well. I consciously choose to go first and not let fear weigh me down nor steal my future wherever it might lead and to whomever it might lead. I might not be invited next time, but if and when I am I will be looking to be a blessing rather than one who’s allowing fear to choke the atmosphere out of the party. I’m not the life of the party, never have been, but hey, I’m a great listener.

Books, Character, Christianity, Fitness, Missions, Personal, Prayer, Pride, Struggle

To Walk the Walk

Sally

I’ve been down (although not completely out).  It seems that I continue to have a lot to learn about perseverance and staying on the path.  Summer tends to do this to me.   If I don’t have a schedule then I completely derail.  I continue to go on a crash course until I can’t stand myself or my kids one second longer and then I finally remember what the answer is, cling to God!  I cannot do it on my own, I never have been able to and I don’t expect to be able to for eternity.  I need to remember my dependence and embrace it like my life depends upon it because, well it does.

I had a mini-break down and got on my knees in full on confession.  Of course, I instantly felt better.  I suddenly had hope again because I realized that God was going to see me through.  The reality is He never left me; I was hiding from Him and from myself.  Why do I do this?

One thing I was recently made aware of is that I have some issues with fear.  I would never say that I was afraid of much before.  I don’t care too much about what people think of me, I have learned to not be fearful of my children’s future or my husband’s God –status.  I am not afraid of death or the future and money never had my heart.  None the less, I have discovered a lack of willingness to live my life to the fullest and I think it stems from fear.  I suspect it could be fear of the hard work required to crucify the flesh and finish something (obedience falls in there too).  I have been made aware of some strongholds in my life and how I might have left a door open to the enemy, giving him some dominion in my home.  Not good.

I need to be set free (again).  The first step to freedom is identifying what areas have been taken by strongholds and identifying what they are.  According to Robert Morris, in his book titled Truly Free: Breaking the Snares That So Easily Entangle, a sure sign there might be strongholds and footholds in our life is if we can identify continual and habitual sin.  Sin allows Satan on opportunity to control and influence us.  I would have to say yes, this has been true for me this summer.  My confession is that I have a habit of “numbing” by way of Netflix. It might not seem like sin to an outsider but I’ve learned that sin can be very overt in this way.   I can watch BBC episodes unending (something about those Brits!) and I do – as a means to escape my real life.  I don’t feel like dealing with my boys so then I’m off to my room to watch an episode.  I don’t feel like working out or cleaning or talking to my husband – off to my room to watch.  Sin!  I know that it is a distraction from what I really need to be doing and it keeps me from engaging in the fight and from really living my own life.  It steals, kills and destroys hours of precious life one hour at a time.  Sound familiar?  Sound like a door open for the enemy?  Does to me, and I’m addicted.  I’m being a slave to television not to God and therefore a slave to sin which leads to death and I will tell it to you straight, I have felt dead.  I have opened a door in my life for the enemy and I am a fool to think there won’t be consequences.

Another thing Robert Morris says that points to strongholds are continued illnesses.  I haven’t been sick from a physical standpoint but I have definitely been unhealthy.  I have gained a lot of weight and become very weak.  I can tell my body is breaking down and it is more than just my age starting to catch up to me.  I have developed a fear of working out (notice the word work there?).  I dread it and have been avoiding it for some unknown reason.  I think I have been believing  some lies that suggest  I can’t lose weight, that I can’t stick to a program to completion, that I can’t make my goals and so why try.  I denounce those lies!  If God says that I can do all things through Him then I can, and that includes completing some personal goals for healthy living and an active lifestyle.  I need to trust in what God says about me and what He has planned for me and I need to start embracing my calling which includes a healthy version of me.  Put the oxygen on yourself before helping others right?

The last thing to beware of is what he calls “continued influence”.  Thank goodness I haven’t gone that far off the deep end.  I don’t do astrology, horoscopes, psychics or the like.  Never have, never will.  I have recently become very sensitive to the idea of the spiritual world and how real it is (another blog) and that is why I am so disappointed that I may have left a door open in my home for the enemy to waltz right in and take me down.

One thing that has been saving me is God’s Word.  I still read my daily digest (as I call it) most every day and catching up when I miss.  This renewal of my mind has been imperative.  For me, it requires a good forty-five minutes of: Jesus Lives and Jesus Calling by Sarah Young, Love Out Loud: 365 Devotions for Loving God, Loving Yourself and Loving Others by Joyce Meyer, Breaking Free Day by Day and Praying God’s Word Day by Day by Beth Moore, My Utmost for His Highest by Oswald Chambers, The One Year Bible NLT from Tyndale House Publishers Inc., Devotions for Sacred Parenting: A Year of Weekly Devotions for Parents and Devotions for a Sacred Marriage: A Year of Weekly Devotions for Couples by Gary L. Thomas, Get Low: Reflections on Pride and Humility by Jack Wisdom and last but not least  65 Promises from God for Your Child: Powerful Prayers for Supernatural Results by Mike Shreve.  Does it seem like over kill?  Well, when you struggle with parenting, pride and love issues it’s not!

Here’s the thing, you can read all you want about God, self-help, God-help, spirituality, what to do, what not to do, etc. and it doesn’t make a bit of difference if you don’t actually apply the principals to your life.  At the very best it can be just another numbing technique (I suspect it has become dangerously close to this for me).  Kind of like feeling skinnier simply because you bought the gym membership or the treadmill.  I need to walk the walk and what I can’t seem to get is that walking actually requires steps to be made.  Not just a wiggle of a toe, not just a comprehensive head nod, or an amen, but an actual step.  And when you string these series of steps upon steps and look back you can finally see that you walked.  Then you realize that you need God to direct these steps so that you are on His chosen path for you and that you do not have the luxury of straying to the left or to the right because He loves you and He knows what ditch, cliff or stronghold waits for you on either side and you learn to trust Him in all things because of a relationship.  And a meaningful relationship with Him can only be developed through consistent prayer and submission.  I realize that I need to be talking to God before I leave the house because that’s where the majority of “steps” take place and I don’t want to be off my path from the get go.

I heard somewhere recently that while faith is an act of worshiping God, fear is an attitude of worshiping Satan.  I do not want to feed my fears, no matter how small and insignificant they might seem.  I do not want to give the enemy the pleasure of stopping me from reaching my potential, my goals and my ministry.  I need to make a series of steps, which make up a walk that show perseverance and a total reliance and trust in my Lord.  I have confessed to you my struggle and now I need a plan.  It starts simple I believe.  It starts with asking God to be with me as I fight the desire to resist working out, resist eating donuts, resist BBC programing.  It starts with noticing a hesitation, a bio-reaction maybe that smacks of fear and moving through that feeling with courage.  It’s when you make it through to the other side that you get to experience that wonder of joy and accomplishment.  That is where I want to live, in the arena with gloves on.  Meet me there!